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BIBLIOGRAPHY FOR PARENTS OF NEWBORNS
PARENTING
Cunningham, Cliff. Understanding Down Syndrome: An Introduction for Parents. Cambridge, MA: Brookline Books. 1999. (3rd printing).
An overview for new parents and professionals of children with Down syndrome.www.brooklinebooks.com.
Kidder, Cynthia and Brian Skotko. Common Threads: Celebrating Life with Down Syndrome. Rochester Hills, MI: Band of Angels Press. 2001.
An essay and photographic celebration of inspirational accomplishments of people with Down syndrome. 800-963-2237; www.bandofangels.com.
Meyer, Donald J. (Ed.). Uncommon Fathers: Reflections on Raising a Child with a Disability. Bethesda, MD: Woodbine House. 1995.
Written for fathers, by fathers of diverse backgrounds. 800-843-7323; www.woodbinehouse.com.
Pueschel, Siegfried M. (Ed.). A Parent's Guide to Down Syndrome: Toward a Brighter Future. Baltimore: Brookes Publishing. 2001.
A comprehensive reference book especially for new parents, but useful and informative for "seasoned" parents as well. Topics include: history of Down syndrome; developmental expectations; early intervention; the school years; recreation; adolescence and adulthood; vocational training and employment. 800-638-3775; www.pbrookes.com.
Stallings, Gene. Another Season. New York: Broadway Books. 1998.
Gene Stallings recounts his life as a football coach and a father, focusing on his relationship with his son Johnny, who has Down syndrome. www.randomhouse.com.
Stray-Gundersen, Karen. (Ed.) Babies with Down Syndrome: A New Parent's Guide. Bethesda, MD: Woodbine House.1995 (2nd Edition).
A comprehensive guide for new parents, covering all aspects of care for babies and young children. 800-843-7323; www.woodbinehouse.com
Zuckoff, Mitchell. Choosing Naia: A Family’s Journey. Boston: Beacon Press. 2002.
A routine ultrasound reveals that the baby Tierney carries has a major heart defect, leading doctors to suspect Down syndrome. This book follows the Fairchild family and the decisions they must make regarding their unborn baby. 617-742-2110; www.beacon.org.
DEVELOPMENT
Bruni, Maryanne. Fine Motor Skills in Children with Down Syndrome: A Guide for Parents and Professionals. Bethesda, MD: Woodbine House. 1998.
A practical and accessible guide to understanding and developing fine motor skills in children with Down syndrome. 800-843-7323; www.woodbinehouse.com.
Kumin, Libby. Early Communication Skills for Children with Down Syndrome. Bethesda, MD: Woodbine House. 2003.
Focuses on speech and language development from birth through the stage of making three-word phrases. Covers problem areas and treatment. 800-843-7323. www.woodbinehouse.com.
Winders, Patricia C. Gross Motor Skills in Children with Down Syndrome: A Guide for Parents and Professionals. Bethesda, MD: Woodbine House. 1997.
Provides parents and professionals with essential information about motor development associated with Down syndrome. 800-843-7323; www.woodbinehouse.com.
FAMILY SUPPORT
Rynders, John E. and J.M. Horrobin. Down Syndrome: Birth to Adulthood: Giving Families an Edge. Denver: Love Publishing. 1995.
Case studies of families woven in a clear, readable fashion, followed by practical suggestions to help both parents and professionals alike. 303-757-2579; www.lovepublishing.com.
MEDICAL ISSUES
VanDyke, Don C. and Philip Mattheis, Susan Eberly, Janet Williams (Eds.). Medical & Surgical Care for Children with Down Syndrome. Bethesda, MD: Woodbine House. 1995.
A guide for parents providing detailed, easy-to-understand information on a wide range of medical conditions. 800-843-7323; www.woodbinehouse.com.
BOOKS FOR CHILDREN
Rickert, Janet Elizabeth. Russ and the Apple Tree Surprise. Bethesda, MD: Woodbine House. 1999.
A day in the life of Russ, who happens to have Down syndrome. 800-843-7323; www.woodbinehouse.com. (other titles in this series are: Russ and the Firehouse and Russ and the Almost Perfect Day.)
Shriver, Maria. What’s Wrong with Timmy?. New York: Little Brown. 2001.
A mother helps her daughter understand that a child who looks or acts differently, is much more like her, than different. www.twbookmark.com.
Stuve-Bodeen, Stephanie. We’ll Paint The Octopus Red. Bethesda, MD: Woodbine House. 1998.
A simple repetitive story told with warmth and directness puts young siblings minds at ease, and helps them develop a positive outlook for their brother or sister with Down syndrome. 800-843-7323; www.woodbinehouse.com.
Woloson, Eliza. My Friend Isabelle. Bethesda, MD: Woodbine House. 2003.
Isabelle and Charlie are friends who don’t have to be just alike to enjoy being with each other. Isabelle has Down syndrome. www.woodbinehouse.com.
For additional resources, please contact the National Down Syndrome Congress at 800-232-6372 or www.ndsccenter.org |
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