GLOBAL, National & State Organizations


NATIONAL DOWN SYNDROME CONGRESS (NDSC)
Leading national resource of support and information for anyone touched by or seeking to learn about Down syndrome.

NATIONAL DOWN SYNDROME SOCIETY (NDSS)
Leading human rights organization for all individuals with Down syndrome.

GLOBAL DOWN SYNDROME FOUNDATION
Public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical Care, Education and Advocacy.

LUMIND IDSC FOUNDATION
Accelerates research to increase availability of therapeutic, diagnostic, and medical care options and empowering families through education, connections, and support.

MY DOWN SYNDROME COMMUNITY (MYDSC)
Developed by the Lumind IDSC Foundation, this free online library includes a comprehensive directory of evidence-based resources and useful tools for individuals with Down syndrome and their families.

DOWN SYNDROME-AUTISM CONNECTION
National nonprofit organization whose mission is to provide education and support to individuals facing the unique challenges caused by co-occurring Down syndrome and autism spectrum disorder (DS-ASD).

DOWN SYNDROME AFFILIATES IN ACTION (DSAIA)
National trade association, composed primarily of local Down syndrome organizations across the U.S., committed to serving affiliates through collaboration, resource sharing, and networking. The Down Syndrome Guild of Dallas is a proud member of DSAIA.

DOWN SYNDROME DIAGNOSIS NETWORK (DSDN)
The mission of DSDN is to connect, support, and provide accurate information for families with a Down syndrome diagnosis. DSDN provides multiple online membership groups and annual retreats for families.

BLACK DOWN SYNDROME ASSOCIATION (BDSA)
The mission of BDSA is to connect Black families in the Down Syndrome community with resources to improve their lives in a more meaningful way by addressing the many inequalities present that increase barriers to access, support, and education.

JEROME LEJEUNE FOUNDATION
International organization focused on three core pillars of expertise — research, care, and advocacy.

DOWN SYNDROME INTERNATIONAL
UK based international organization comprised of individuals and organizations from all over the world that is committed to improving quality of life for people with Down syndrome and promoting their right to be included on a full and equal basis with others.

INTERNATIONAL MOSAIC DOWN SYNDROME ASSOCIATION
Provides support, information and research to any family, individual or professional whose life has been affected by mosaic Down syndrome.

NATIONAL DOWN SYNDROME ADOPTION NETWORK
Specializes in ensuring that every child born with Down syndrome has the opportunity to grow up in a loving family.

HOPE STORY
Gives support, encouragement and hope to parents whose child has received a Down syndrome diagnosis; provides free resources to the medical community to help doctors deliver a Down syndrome diagnosis, and helps parents of children born with Down syndrome use their story to bring hope to others.

NAVIGATE LIFE TEXAS
Comprehensive website dedicated to helping Texas families find the resources and services they need to support their loved ones with disabilities.

DISABILITY RIGHTS TEXAS
Assists people with disabilities in Texas understand and exercise their rights under the law, ensuring their full and equal participation in society.

TEXAS PARENT TO PARENT
Committed to improving the lives of Texas children who have disabilities, chronic illness, and/or special health care needs.

TEXAS COUNCIL FOR DEVELOPMENTAL DISABILITIES (TCCD)
Helps people with developmental disabilities achieve their potential for independence, productivity and integration into their communities by working to develop a comprehensive system of service and supports in Texas.

COALITION OF TEXAS WITH DISABILITIES (CTD)
Largest and oldest member-driven cross-disability organization in the state of Texas focued on governmental advocacy, public awareness activities, and professional disability consulting to make Texas a leader in disability-related public policy and culture.

THE ARC OF TEXAS
Promotes, protects, and advocates for the human rights and self-determination of Texans with intellectual and developmental disabilities.

DALLAS METROCARE SERVICES
Local intellectual and developmental disability authority (LIDDA) for Dallas County providing programs, services, and supports to eligible children and adults in the community.

DENTON COUNTY MHMR
Local intellectual and developmental disability authority (LIDDA) for Denton County providing programs, services, and supports to eligible children and adults in the community.

LIFEPATH SYSTEMS
Local intellectual and developmental disability authority (LIDDA) for Collin County providing programs, services, and supports to eligible children and adults in the community.

LAKES REGIONAL MHMR CENTER
Local intellectual and developmental disability authority (LIDDA) for Ellis, Hunt, Kaufman, Navarro, Rockwall, Camp, Franklin, Morris, Titus, Delta, Lamar, and Hopkins counties providing programs, services, and supports to eligible children and adults in the community.

TEXOMA COMMUNITY CENTER
Local intellectual and developmental disability authority (LIDDA) for Cooke, Grayson, and Fannin County. TCC serves as the point of entry for publicly funded intellectual and developmental disability (IDD) programs, whether the program is provided by a public or private entity.

In support of our organization's mission to "provide accurate and current information, resources, and support for people with Down syndrome, their families, and the community”, the Down Syndrome Guild of Dallas “Resources” page and subsequent pages are provided for informational purposes only. Inclusion on this and subsequent resource pages should not be considered an endorsement by the Down Syndrome Guild of Dallas (DSG). The resources, programs, and events listed on these pages may not necessarily express the views of the Down Syndrome Guild of Dallas and inclusion is intended to inform not influence readers. The Down Syndrome Guild of Dallas believes by providing this information each family will be able to make decisions based upon their personal beliefs and unique circumstances. The Down Syndrome Guild of Dallas frequently reviews and updates the content included on this and subsequent resources pages. If you wish to suggest a resource for inclusion on the DSG website or report inaccuracies or broken links, please contact us.