Medical & Research
GLOBAL DOWN SYNDROME FOUNDATION
Public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical Care, Education and Advocacy.
LUMIND IDSC FOUNDATION
National organization committed to accelerating research to increase availability of therapeutic, diagnostic, and medical care options and empowering families through education, connections, and support.
JEROME LEJEUNE FOUNDATION
International organization focused on three core pillars of expertise — research, care, and advocacy.
DS-CONNECT™: THE DOWN SYNDROME REGISTRY
People with Down syndrome and their families can connect with researchers and health care providers, express interest in participating in certain clinical studies on Down syndrome, and take confidential health-related surveys aimed at better understanding the health of people with Down syndrome across their lifespans.
DOWN SYNDROME MEDICAL INTEREST GROUP-USA (DSMIG-USA)
Membership organization that consists of professionals from a variety of disciplines who provide care to individuals with Down syndrome and/or their families. DSMIG-USA fosters professional growth through the dissemination of information about evidence-based practice and shared common experiences that inform best practices in the care of individuals with Down syndrome.
DOWN SYNDROME CLINIC TO YOU (DSC2U)
With DSC2U, caregivers have an opportunity to complete an online intake form, where they can identify current health concerns about their son or daughter with Down syndrome. The responses will generate two personalized documents–a plan for caregivers and another one for the primary care provider.