Prenatal & Postnatal Diagnosis
DOWN SYNDROME GUILD OF DALLAS (DSG) NEW PARENT KIT AND FIRST CALL PROGRAM
Resource and welcome kit for new and expectant parents that includes general information and facts about Down syndrome, information on early intervention and therapies, financial resources, and more. The First Call Program connects new and expectant parents with trained parent volunteers to help answer questions and share their experiences of raising a child with Down syndrome. The DSG also provides a wide variety of social and educational opportunities for new and expectant parents throughout the year.
DELIVERING A PRENATAL OR POSTNATAL DIAGNOSIS BI-FOLD
For medical providers delivering a prenatal or postnatal diagnosis for various genetic conditions, including Down syndrome. This bi-fold summarizes the research-based best practices for delivering a diagnosis during an emotionally sensitive time for a patient. Medical providers can request free copies at https://resources.lettercase.org/ or by contacting us.
UNDERSTANDING PRENATAL SCREENING AND TESTING BIFOLD
For pregnant women considering prenatal screening and testing during pregnancy. This pamphlet covers the different prenatal screens and tests available, reasons why someone might or might not want to test, and an overview about the different conditions usually included in the testing panel. Medical providers can request free copies at https://resources.lettercase.org/ or by contacting us.
PRENATAL TESTING PAMPHLET
Pamphlet published by the Global Down Syndrome Foundation, National Down Syndrome Congress, and National Down Syndrome Society. The pamphlet is available in English, Spanish, and Icelandic. Contact us for a free printed copy of this booklet.
UNDERSTANDING A DOWN SYNDROME DIAGNOSIS
For expectant parents immediately after receiving a confirmed prenatal diagnosis or results indicating high chances for Down syndrome. This booklet offers basic information about Down syndrome; potential medical complications; resources about Down syndrome; prenatal screening and testing information; available health and social services; and family outcomes. Multiple languages available. Medical providers can request free copies at https://resources.lettercase.org/ or by contacting us.
“COMMUNICATING UNEXPECTED NEWS” CURRICULUM
Developed by Jack’s Basket, this curriculum is designed to equip healthcare providers with the knowledge, strategies, and communication techniques required to deliver unexpected or challenging medical information to patients and their families with compassion, sensitivity, and professionalism. The curriculum is designed for all Medical Learners and is worth 10 AMA PRA Category 1 Credit(s)™ at no cost to participants.
NATIONAL DOWN SYNDROME ADOPTION NETWORK: PLANNING A LOVING FUTURE BOOKLET
Booklet produced by the National Down Syndrome Adoption Network adoption as an option. Contact us for a free printed copy of this booklet.
COPING WITH LOSS: DOWN SYNDROME
Offers support to families who have experienced a miscarriage or lost a baby or child with Down syndrome by covering topics like coping with grief; dealing with comments and the practicalities of loss; helping siblings cope; and finding resources. Contact us for a free printed copy of this booklet.
DOWN SYNDROME PREGNANCY RESOURCES FOR FAMILIES
Books offering support to expectant parents who are preparing for the birth of a baby with Down syndrome. Titles include Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome, Welcoming a Newborn with Down Syndrome: A New Parent’s Guide to the First Month, Breastfeeding and Down Syndrome, and Your Loved One is Having a Baby with Down Syndrome. Medical professionals and/or parents may contact us for free printed copies of any of these publications.
DOWN SYNDROME MEDICAL INTEREST GROUP-USA (DSMIG-USA)
Membership organization that consists of professionals from a variety of disciplines who provide care to individuals with Down syndrome and/or their families. DSMIG-USA fosters professional growth through the dissemination of information about evidence-based practice and shared common experiences that inform best practices in the care of individuals with Down syndrome.