dual diagnosis down syndrome & autism

DOWN SYNDROME-AUTISM CONNECTION
National nonprofit organization whose mission is to provide education and support to individuals facing the unique challenges caused by co-occurring Down syndrome and autism spectrum disorder (DS-ASD). The organization offers private Facebook Support Groups and Zoom meeting support groups.

AUTISM SPEAKS
National nonprofit organization dedicated to creating an inclusive world for all individuals with autism throughout their lifespan. The organization offers advocacy, services, supports, research and innovation, and advances in care for autistic individuals and their families.

NDSC: AGES & STAGES CO-OCCURRING DS-ASD
Introduced in 2020, the National Down Syndrome Congress features both a free and premium access option to general information, webinars, and resources for a variety of ages and stages. The annual NDSC Convention also features a track with educational sessions on topics relevant to individuals diagnosed with DS-ASD.

BOOK: WHEN DOWN SYNDROME AND AUTISM INTERSECT: A GUIDE TO DS-ASD FOR PARENTS AND PROFESSIONALS
Edited by Margaret Froehlke, R.N. & Robin Zaborek. When Down Syndrome and Autism Intersect offers a thorough examination of the unique profile of a Down Syndrome-Autism Spectrum Disorder (DS-ASD) diagnosis and best practices for screening, treatment, and caretaking through the lifespan. This one-stop resource, the first of its kind, will greatly benefit families whose child is already diagnosed, and also those who suspect something more than Down syndrome. Professionals, too, will find information on how to distinguish DS-ASD from a diagnosis of just Down syndrome, and guidance on providing services for children and adults. (En Español)

BOOK: A NEW COURSE: A MOTHER’S JOURNEY NAVIGATING DOWN SYNDROME AND AUTISM
By Teresa Unnerstall. A New Course is a hybrid of a memoir combined with valuable lessons following each chapter and in the appendix. This book takes a deep dive into the complexities that families face raising a child with a dual diagnosis of Down syndrome and autism (DS-ASD) and other intellectual and developmental disabilities. (Blog: Down Syndrome with a Slice of Autism)

In support of our organization's mission to "provide accurate and current information, resources, and support for people with Down syndrome, their families, and the community”, the Down Syndrome Guild of Dallas “Resources” page and subsequent pages are provided for informational purposes only. Inclusion on this and subsequent resource pages should not be considered an endorsement by the Down Syndrome Guild of Dallas (DSG). The resources, programs, and events listed on these pages may not necessarily express the views of the Down Syndrome Guild of Dallas and inclusion is intended to inform not influence readers. The Down Syndrome Guild of Dallas believes by providing this information each family will be able to make decisions based upon their personal beliefs and unique circumstances. The Down Syndrome Guild of Dallas frequently reviews and updates the content included on this and subsequent resources pages. If you wish to suggest a resource for inclusion on the DSG website or report inaccuracies or broken links, please contact us.