Presented by Michelle Sie Whitten, President & CEO, Global Down Syndrome Foundation and Dr. George Capone, Director, Down Syndrome Clinic & Research Center, Kennedy Krieger Institute, Johns Hopkins School of Medicine

The much-anticipated GLOBAL Medical Care Guidelines for Adults with Down Syndrome are now published and available! Learn about the first set of evidence-based, updated recommendations for families and self-advocates (people with Down syndrome) to share with their medical providers across the US. This first version of the Global Guideline covers 9 topic areas deemed critically important for the health and well-being of adults with Down syndrome, resulting in 14 recommendation statements and 4 statements of good practice. This presentation will cover the guideline creation process, how family focus groups informed the guidelines, and the patient toolkits created to accompany the guidelines. We will discuss how families and self-advocates can access the guidelines and how/why they may differ from previous guidelines. We will also outline the future research needed to build up the existing evidence base and map out a plan for the second version of the guidelines, expected over the next 5-6 years.

Space is limited and registration is required by March 3. Have questions? Please contact Jennifer Ford.